Lilly Update

Lilly continues to do well and is making her slow way to recovery. She is a kind of two steps forward, one step back kind of girl.

Thursday Lilly started getting a little bit larger amounts of milk and tea mixed. The the doc told the nurse to up the amount and go with pure breast milk. That afternoon she started to get some painful gas and as time went on drank only a small amount. I emptied her colostomy bag Thursday early evening and by yesterday morning there was still hardly any contents and what there was was very dark and thick (I am sure you all enjoy descriptions of the contents of my kid's poop bag). She was also having tremendous tummy ache. So I brought this to the attention of her nurses and doctor and they then flushed her intestines out. Out came all the goodies and the girl has been farting loudly ever since!

She also got her epidural removed and her urinary cathether out today as well as her NG tube. What a difference 3 fewer "cables" makes! She also got a sponge bath today. After that she was much more comfortable, very smiley and tired.

However, she also started vomitting again and had zero appetite. She would not drink anything from 9 this morning till 4 this afternoon. So, we are starting from scratch building her up again.

Now they have added one more infusion of fat to keep her weight up.

We are doing very well thanks to the help of Peter's parents and sister, and also thanks to your prayers and words of support. No word yet on when we will be able to return home.